Committees:

• Diverse Data Collections (DDC)

• Partnerships

Qualifications

C. Hartman is qualified to serve on our Board because of her extensive experience in government relations advocating and advancing precision medicine for medically underserved patient groups. She is a leader in the rare disease community as a Rare Mom, a mother with a child who has a rare disease.

Background

C. Hartman is Head of US Government Relations for Alliance for Regenerative Medicine. Previously, she served as Vice President of External Affairs for The Assistance Fund, Senior Director of EveryLife Foundation for Rare Diseases, and Director of American College of Cardiology. She started her career at the CDC, and then worked for the Department of Health and Human Services. At Pew Charitable Trusts, she worked to get the GAIN Act passed in 2011, which provided incentives for the development of novel antibiotic drugs. At EveryLife Foundation for Rare Diseases, she worked with Global Genes on the Rare on the Road program to get advocates, patients, and caregivers with rare diseases to Capitol Hill. At The Assistance Fund (TAF), she advocated to increase access to transformative therapies, including novel cell and gene therapies, and has advocated for The Precision Medicine Answers for Kids Today Act, introduced to Congress last fall. If signed into law, this will expand access to genomic sequencing, and will allow clinicians to have discretion to decide what type of genomic testing is needed to get a diagnosis.

Other Boards

• The Foundation for Cell & Gene Medicine

• Global Genes

• National Center for Advancing Translational Sciences (NCATS) at NIH

Education

• Master of public health, George Washington University

• BA, Catholic University of America